WATCH: Mother shares son's inspirational story of rare condition

Yet when he was born doctors feared he would not survive longer than a day. He had been diagnosed in the womb with the rare condition known as exomphalos, meaning his internal organs grew inside the umbilical chord.

His mother Sally-Anne, aged 34, of Beechdale, Walsall, has now launched an online video to raise more awareness about the rare condition.

It shows pregnant women and mothers with babies suffering from exomphalos, which affects one in every 2,500 children, that there is light at the end of the tunnel.

Sally-Anne uses flash cards and pictures, without speaking, to explain her tough journey through pregnancy, the diagnosis, birth and the pain of not knowing if her son would make it, until finally reaching where she is today, the mother of three boys.

"It's such a rare condition and no one really knows anything about it," she said.

"I wanted to try and raise awareness about it so I put together a video, which has now had more than 12,000 views online.

"I want to get as much information out there as possible, as well as setting up a supporting network for people who have had babies or those who are carrying babies with the illness."

Exomphalos is a abdominal wall defect and with Daniel's condition as it is today, it is like living with a permanent hernia.

While he was still in the womb his stomach, intestines and liver had all grown through the umbilical chord and were protruding out of his where his belly button should have been.

Doctors had given him just 12 hours to live when he was born.

He had numerous operations to try to put his organs back, including a procedure when he was 18-months-old to create new abdominal muscles to held everything in place.

Daniel, who attends Willenhall E-ACT Academy, supports Manchester United and is the older brother of Mitchell, 11, and Cameron,eight, will be back in surgery again next week for a hernia operation.

One of the major side effects of his condition these days is stomach paralysis.

But Sally-Anne, who is married to 33-year-old Simon, said he still managed to lead a very good life.

"He suffers from a few problems but it's nothing major," said Sally-Anne, who has also set up Exomphalos Support Group West Midlands on Facebook.

"I just want to give people hope because this can happen to anyone at any time.

"If they have a baby born like this hopefully they can see Daniel, now as a 14-year-old boy, running around a football field. He's pretty inspirational."